As I mentioned in a previous post, in October Pumpkin was also diagnosed with postural tachycardia. She was falling down and passing out sometimes. It has improved with increased fluid intake and intentional daily exercise. POTS (postural orthostatic tachycardia syndrome) is common in hypermobility syndrome. I think I will look further into MCAS in light of Pumpkin’s recently discovered food allergies. I think MCAS tends to pop up in these patients too. Just wanting to cover all the bases.
This past month or so, Pumpkin has been having lots of abdominal cramping, anal sores, intermittent diarrhea, 5 lb weight loss and more joint pains along with the rest of her health problems. Her blood work, as usual, showed no elevations in crp or sed rate. CBC and CMP was also normal. She’ll see GI next week. Her rheumatologist is having her increase her 6MP to see if it will help. Usually GI isn’t very helpful, but we’ll see what she has to say.
