So we went to see the GI again. He didn’t seem at all concerned with Pumpkin’s symptoms. He said she looks good because her weight is “10%-ile”. I tried to point out that her BMI is not normal because her height is 94%. He seemed happy because the BMI was 14. I guess he doesn’t look at percentiles like her pediatrician. Her BMI is “0%ile”. He didn’t have much to say about her bleeding after insisting that she must have been constipated, although she wasn’t and hasn’t been. He discussed meds to increase her appetite and nutritional shakes. He doesn’t remember that she has done all that. He brought up G-tube. Not an option yet as far as we’re concerned. He finally brought up an option I was hoping for – rescoping. We’ll do it on Tuesday. I am hoping for a clearer picture of what is going on inside after 2 years of treatment. I don’t expect a whole lot since most of her disease is in her small bowel where the scopes can’t see it. I think we’re ready for a major med change. Something has to be better than this. Remicade? Regardless, I am also doing research on some major diet changes.
Oh, and the “Calm” supplement seems to be helping. She is getting to sleep easier.
